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RCOphth Publish Corneal Cross-Linking Data Set

16 August 2016

The Corneal Cross-Linking Data Set July 2016 has been composed with the support of The Royal College of Ophthalmologists’ Informatics and Audit Sub-committee, who comprise of a representative selection of experts in a variety of healthcare environments across the UK.

The purpose of the Corneal Cross-Linking Data Set is to represent an agreed set of clinical information which can be collected on patients being considered for corneal cross-linking. As well as defining the items to be collected, the dataset also describes the format for each item. The data set can be used as a basis for clinical care, outcome analysis, clinical audit, revalidation, and research. Common use of the data set will ensure that information collected by different clinicians, using different paper or electronic systems in different locations, is easily transferable, and can therefore form the basis of large, anonymised databases for audit and outcomes research.

This data set applies only to patients with corneal ectasia who may be suitable for corneal collagen cross-linking. In this context, corneal ectasia encompasses keratoconus, pellucid marginal degeneration and post-excimer ectasia.

You can download the data set here.