BOSU News: No 32. Spring 2018
20 March 2018
Welcome to the first BOSU News for 2018. This year marks our coming of age as we enter our 21st year of rare disease surveillance in the UK. In this issue we have summarised the results of our 20-year evaluation. The most noteworthy of which are the high levels of utilisation of study findings and the non-stop support of the UK ophthalmological community without which the unit would not be able to achieve such success.
Once again, the BOSU will be a prominent feature of the College Congress in May, there will be a stimulating symposium on rare disease epidemiology that will focus on retinal infections, external diseases and paediatric conditions. In addition, 5 studies will present their initial findings and details of these presentations along with references for the six BOSU related papers that have been published since last summer are on the back page.
As usual the newsletter contains progress reports of our current studies. We continue to review new applications, but if you have an idea for a study please do contact the unit to discuss it. We are always keen to hear of new ideas or to revisit past topics.
As always, we are extremely grateful to Fight For Sight for their continued support for the unit.
Details of response rates across the UK are included in this report. We do encourage you to return your card every month indicating any cases of interest you have seen or ticking the ‘nothing to report’ box, as a high response rate really does improve the quality of the important work undertaken by our researchers.
Miles Stanford
On behalf of the BOSU Steering Committee